You will find a number of video’s about other people’s fight with ONH

Emilia was born on 6th March 2009, we were so happy to hold her in our hands finally. She was a blessing, our newborn baby had no health problems at all, we were so happy and so exited to bring her home.

As time went by she seemed a very healthy baby. but when she turned 3 month’s old we noticed that her eyes were not focusing as they should focus around that age.

She never seemed to look up at our faces, so we were concerned and we took her to the eye doctor. The doctor couldn’t really tell us what was wrong with her eyes, he said it’s may late development,. He mentioned that her optic nerves looked small, but didn’t diagnose anything.

He referedEmilia for more tests to find out what the problem was. When Emilia was six month’s old we finally got the results back and they were not good at all. She was diagnosed with optic nerve hypoplasia (ONH).

ONH is a medical condition that results in underdevelopment of the optic nerves. Her optic nerves, which transmits visual signals from her eyes to her brain are underdeveloped. This is rare condition that causes blindness,
Emilia is legally blind, She never follows objects, toys, and never looks up to faces no matter how close you are.
It’s so heartbreaking to see our baby girl not fully enjoying her babyhood, not seeing how parents look, not playing with colourful toys, not seeing the whole beautiful nature which God created.

Despite not seeing the whole world she is very lovely baby girl, Emilia is eight month’s old now. Our baby loves being in our hands, she loves music, laughing, being outside, listening  toys wich are making some noises as she puts big smile on her face. We love her so much.
After doctor told us Emilia’s diagnose he said that there is no treatment for her condition and there is nothing we can do. It’s untreatable. It was so hard and painful to hear that. But we never gave up and deep inside we believed that there must be something  to help our miracle.  The same day we got back home and started to look on the internet for any help. And we found these websites http://www.stemcellschina.com/ and www.beikebiotech.com which gave us hope that there is a way to help our baby.
China is the only place where we can get a treatment for Emilia’s sight. They use umbilical cord blood stem cell injections which helps nerves to grow. After we contacted the doctors in China they told us that she would need 6 injections and we would need to stay there for 30 days. The treatment will cost  19,000 GBP. They want us to go by february as the younger she is the better results we can get. This is the one and only chance to help Emilia.
As  parents we just want give our baby the best chance in life we can. We don’t want to blame ourselves after couple years of not taking a chance, of not trying everything for our girl.  We would love for our girl one day to be able to see our faces and a whole beautiful world ( flowers,sky,sea,  nature, and other children)

We would love for her to able to do all the things that normal children can do. If she just have a sight the whole world would be so different for her. She wouldn’t need rely only on hearing, that would be the whole new life for her.

Please help us give our daughter Emilia priceless gift of sight. Help our baby to have a better life by donating for her sight which we all need so much.